These terms and conditions cover:
Permission to use anonymised data
Deletion of data
What personal information we collect
How your information is used
Registration information
Aggregated genomic and biomarkers information
Web behaviour information
Information disclosure as required by law
Your choices
Security
Privacy statement changes
Closing an account and collecting the information
How to file a complaint
Business transitions
How to contact us
As medical professionals we have spent our lives reading others research and producing our own to improve our knowledge and better advance medical understanding and improve wellness.
We actually understand what that means and in this exciting era where we can analyse large amounts of data we can really make some meaningful discoveries that will help to improve all of our health. We would like your permission to continue this.
Permission to use anonymised data
We would like to use and analyse your anonymised data.
Analysts will NOT have any access to any identifiable data, this is done in a number of ways. Data that is analysed by algorithms will be separated from identifiable data name, DOB and any personal details.
Deletion of data
If you want to have your data deleted even after this agreement, just contact us and any non-medical data will be deleted.
By law in the UK we have to keep a copy of your data for 7 years.
What personal information we collect
Personal information is information that can be used to identify the user either alone or in combination with other information. Life 1000 collects the following types of personal information:
- Registration information is the information you provide when registering and/ or purchasing our services and products
- Genetic information is information related to your genes generated through the analysis by life 1000 or by its contractors, successors, assignees or otherwise processed by and/or contributed to life 1000. Life 1000 provides two types of genetic information: your genotype, which is the actual DNA sequence resulting from our analysis, and phenotype, which is the observable trait information resulting from the DNA sequence, such as the sensitivity to caffeine.
- Blood markers Is information related to your blood results generated through the analysis of you blood by Life 1000 or by its contractors, successors and assignees or otherwise processed by and/or contributed to Life 1000. Life 1000 provides blood results through a UK certified laboratory registered with CPA and the Care Quality Commission.
- Microbiome is information related to your microbes generated through the analysis of your stool sample by Life 1000 or by its contractors, successors and assignees or otherwise processed by and/or contributed to Life 1000. Life 1000 provides a report by our partner in London Atlas Biomed for both microbiome and genetics subject to our terms and conditions.
- User content is all the other information provided by Life 1000 users that does not include genetic information, blood or microbiome. This information is distributed publicly or privately, to or through Life 1000.
- Web behaviour Is information on how users make use of the Life 1000 website, which collected through log files, cookies, and web beacon technology.
- Referral information Is information that you give when referring Life 1000 to your friends and contacts as part of the Life 1000 referral programme.
How your information is used
Life 1000 collects the general personal information you provide to operate your account and to use our services. These include: the provision of our Services;the improvement of our Services and offering new products and services;informing about events; invitations to research projects, obtaining testimonials for promotional purposes; performing quality control checks; conducting other R&D; and conducting Life 1000 Research. Your genetic information is used to provide you with the genetic sequencing and the resulting traits relevant to your overall health and wellbeing to improve your health, energy and future wellness.
Registration information
We use your Registration Information to facilitate your purchases, inform youabout the analysis of your Genetic Information, provide you with customer service, manage the Services, and verify your use and visits to our website.
Aggregated genetic, microbiome, biomarkers and self-Reported information
While genetic information is, in and of itself, interesting, its use and value to the scientific community increase when you are able to compare it to the genetic and other information of other people. The only way that scientists have been able to understand the effects of certain genetic traits is by comparing a sample to another population.
The precision of looking at all of these areas together is new and the accuracy is therefore still improving, this can only be done with your help.
Life 1000 is building on knowledge derived in this way and we intend to participate in building even more knowledge. Users take advantage of this and also participate in this.
We may disclose to third parties “Aggregated Genetic and Self-Reported Information”, which is information that has been obtained from your Registration, Genetic, and Self-Reported Information, and aggregated with the data of other users to minimise the exposure of individual information while still providing enough scientific evidence. We also de-identify this data by removing any information that is directly related to you, such as name, address, and email.
We will take reasonable measures to make this information non-identifiable,meaning that it would not be reasonably foreseeable that the information could be utilised, either alone or with other information readily available, to identify an individual or to connect an individual to any particular data. We will also make efforts to only provide the minimum amount of aggregate information and self-reported data that is necessary to answer research questions. We will also use contractual means to protect the privacy and security of your aggregated data and Self-Reported Information when we work with research partners.
The goal of these research partnerships is to accelerate discovery, and may leadto scientific publications, intellectual property creation,and/or commercial applications, which users will not be credited for nor receive any financial benefit from.
Except for de-identified and/or anonymised information as described in this section, we will never release your Genetic and/or Self-Reported Information to a third party without asking and getting explicit consent from you to do so,unless we are required to by law. If we are legally required to disclose such information, we will make reasonable efforts to notify you unless we are legally prohibited from doing so.
Web behaviour information
We use Web Behaviour Information to understand how users make use of our website, for R&D purposes, for quality control in order to improve our Services, and to advertise products and services. This information will not be shared with any third parties without consent, except following de-identification by anonymisation and aggregation.
Information Disclosure:
- We will not disclose your personal information to any third party except with your informed and express consent or as required by law, upon verified lawful authority as explained above.
- Where we transfer your personal information for processing, it will be exclusively with contractual and other means to ensure a comparable level of protection and to carefully screened partners or ether service providers, such as the contracted laboratory that collects and analyses your information in order for you to use Life 1000 Services.
- Where we provide information to research and research contractors in the form of de-identified, aggregate information, for scientific research purposes we screen these research contractors and we subject them to the rules established by Life 1000.
- Aggregate, de-identified data may lead to commercial use.
Information disclosure as required by law
Under some circumstances, personal information other than genetic information, can be shared pursuant to judicial or other government orders, or in coordination with regulatory authorities. You understand and accept that Life 1000 is free to keep and disclose personal information to law enforcement agencies, as required by law, or in the good faith that such disclosure is necessary to: (a) comply with legal or regulatory processes or obligations that Life 1000 might owe to ethical or professional rules, laws, and regulations; (b) enforce the Life 1000 TOS; (c) respond to claims that any content is violating the rights of third parties; or (d) protect the rights, property or Life 1000’s safety and the public. If we are required by law to make a disclosure, we will notify you through the contact information that you have provided us, unless doing so can violates the law or a court order. in the UK medical data is required to be kept for 7 years.
Your choices
Providing your Personal Information other than Registration Information is voluntary and based only on the permission you give.
Sharing Self-Reported Information through surveys, wearable integrations, or other website features, is voluntary.
If you provide a written request, we will close your account. All health information that we are legally allowed to remove will accordingly be deleted from your account and no one will be able to access it. Life 1000 will not use your information in new scientific research that starts thirty (30) days or more after your account is closed. We cannot delete information that has already been used for scientific research or that has been shared with external collaborators before the account is closed.
Security
Life 1000 is committed to keep the trust you place in us. To prevent prohibited access or disclosure, to maintain information accuracy, and to ensure using the information appropriately, Life 1000 uses various physical, technical, and administrative measures to keep your personal information, as it is stated in current standards. Particularly, all connections to our website and our mobile applications are encrypted using Secure Socket Layer (SSL) technology. All our production machines (including databases) are behind VPC and can only be accessed via a secure VPN network .
Please understand that protecting your personal information is also your responsibility. We ask for you to be responsible for keeping your password secure, as well as other authentication information. You should not share your authentication information to any third parties and you should inform Life 1000 immediately of any prohibited use of your password. Life 1000 cannot keep the personal information that you release or that you request us to release safe.
Privacy statement changes
This Privacy Statement was updated on 13th January 2020. When any significant change is made to the Privacy Statement, a notice will be posted as part of this Privacy Statement and it will be placed on our homepage for 30 days. After 30 days, the changes will become effective. Additionally, all of our customers will receive an email notifying them that changes have been made.
If you continue to use the service after the effective date of the change, you will be considered to have agreed to the amended Privacy Statement. If you do not agree to the amended Privacy Statement, you have the option of ending your Life 1000 account by contacting us at look@life1000.co@life1000.co.
Closing an account and correcting personal information
If you do not want to participate any longer in our Services, you can close your account by sending a request to look@life1000.co@life1000.co. When you request to close an account, we remove all of your information (that we legally can) within thirty (30) days of when we receive your removal request. However, information will not be removed from ongoing or completed studies that use this information. Our contracted laboratory may also retain your de-identified information as required by law. Additionally, we keep information as it is related to your order history for accounting purposes.request
If there are any changes in your Personal Information, you can correct or update them by accessing your Account Settings page. You can also correct or reset Self-Reported Information entered into the surveys from within your account.
How to file a complaint
You have the right to file a complaint if you do not agree with how we have used or disclosed your information. All complaints must be submitted in writing. Your services will not be affected by any complaints you make. We cannot retaliate against you for filing a complaint or refusing to agree to something that you believe to be unlawful. Please contact us below, we will attempt to expeditiously resolve any concern or complaint you may have. Alternatively, you can contact a data and privacy protection organisation for assistance or advice.
Client Complaint Information
As a business we strive to provide the best possible service for our clients. However, we recognise that sometimes you may feel that we have not met your needs.
If you have any complaint or concern about the service you have received from the doctors or staff working at this centre, you are entitled to ask for an explanation.
We operate an in-house complaints procedure to deal with your complaint. This procedure does not deal with matters of legal liability or compensation.
Our promise to you
We will:
Listen to your complaint or concern;
Respond by establishing a clear, appropriate plan of action, and provide you with relevant support and advice;
Improve the service however we can.
How to make your complaint
We hope that we can resolve your problem easily and promptly, often at the time the problem arises and with the person concerned. If your problem cannot be sorted out in this way and you wish to make a complaint we would like you to do so as soon as possible. This will enable us to establish what happened more easily.
Please make your complaint in writing to the manager, Dr. Geoffrey Mullan at help@humanpeople.co . If you would like assistance with making your complaint, a member of staff will be able to help you complete a Complaint Form.
Please be assured that any complaint you make, written or verbal, will be treated in strict confidence and have no effect upon the level of treatment and care that you receive at the practice.
If you would prefer a family member, friend or advocate to make the complaint on your behalf, they may do so and the centre will work with them, and yourself, to resolve the problem. However, whilst we can receive a complaint on your behalf we cannot provide any medical information to a third party without your authority. To discuss or provide confidential information we would require a note signed and dated by you. A member of our staff would be happy to assist you with this.
What happens next?
Your complaint will be acknowledged within two working days of receiving it. This may well be a phone call from Lukasz Hoffman to you (or your advocate) to make sure we fully understand your complaint.
We aim to make a full response to you within the next 28 working days. During that time we will conduct an investigation to find out what has happened and whether there is any action that can be taken to put things right. If at the end of those 21 days we are still conducting our investigations, we will notify you of the position and keep you fully informed until our investigations have been concluded.
As a result of the practice investigation we will:
Make sure your receive an apology;
Find out what has happened and what went wrong;
Make it possible for you to discuss the problem with those concerned, if you would like this;
Keep you informed of our progress;
Identify what we can do to make sure that problem does not happen again.
Getting further help with your complaint
We hope that, through our practice complaints procedure, we can resolve your problem satisfactorily. We believe that this will give us the best chance to put the matter right with you and the opportunity to improve our services for all our clients
Where the complaint cannot be resolved between the parties, external arbitration will be sought. Dr Mullan is a member of the Independent Doctors Federation and will refer to the IDF if internal resolution cannot be achieved. Should there still be an impasse then the IDF will refer the complaint to the Independent Healthcare Sector Complaints Adjudication Service. ISCAS and its findings will be final to both parties.
You may also contact the Care Quality Commission, if you feel that your complaint is not being dealt with in a satisfactory manner, on 03000 616161. (Note: the CQC will not arbitrate in a complaint, but require the provider to make their (CQC) contact details available to the service user).
Thank you Dr Geoff Mullan
Business transitions
In the event that Life 1000 or a business unit of Life 1000 is bought, sold, transferred, spun-out or merged with another entity, your personal information will be transferred along with the other assets. In this case, your information would remain subject to the terms of this privacy statement.
How to contact us
Questions regarding this Summary, the Privacy Statement, or how Life 1000 handles your Personal Information can be emailed to look@life1000.co or mailed to:rtner in
Life 1000 37 Connaught Street, London W2 2AZ